Miller Update

I finally got the call from children's and we will be having the MRI on Millers head Tuesday! We still do not know a time we will get a call Monday afternoon!

Swimming, Swimming, and Swimming

 

As most of you know we are BIG into swimming! Both boys starting taking at 12 months old and are still taking. Miller takes more now due to his leg, Fisher takes just to better his swimming skills. But both boys LOVE swimming most of the time.

Fun Fall Day

 

The things we do to keep kids busy! Most days we stay out side ALL DAY and this was one of them. Plus I had just cleaned the house and I would like it to stay clean for at least a day!

Getting ready for Halloween

 

This is the first year we have carved pumpkins and the out come was no one liked doing it except ME!! Miller and fisher both hated the filling of it so they both got up and walked away. The only good thing is I was able to get it done in no time since I didn’t have little hands helping. But at least I did get a picture of them together!

Miller update

We had a great weekend no leg pain but Miller did have three headaches. But over all it was a fun fill weekend. Friday Miller and Fisher went to my parents house while Nick and I went to dinner and dinner was great!

Saturday we spent the day with Gigi ( my mom) and we stayed to watch the bama game.

Sunday we went to church and had a wonderful Sunday school class and them I had nursery. After church mom and I took the boys to Indian hills for the fall festival, then we headed back to church.

Today we went to see are ped dr and see what she has to say about Millers headaches, she felt the same way Dr. Taylor felt! So with that being said we will have a scan done with contrast
( dye ran threw millers head) at children's to see what is going on. I am not sure when this will happen I am still waiting on a call from the dr.s office to let me know time and date but until then we are to monitor him. Will update when I find out more.

Dr. Taylor

Yesterday Miller had his 6 month follow up with Dr. Taylor since his last surgery which we are very blessed to have had done. Normally they do not do this type of surgery till the child has reached the major growth miles stone which for boys is normally 10,15,& 19 due to the high risk of bleeding. But due to Miller unable to walk in the mornings due to the tumor it HAD to be done! Let's just say since the surgery it has been unbelievable the difference in the morning. We still have swim therapy and issues some mornings but nothing like before. Yesterday while seeing Dr. Taylor we learned that the tumor had shrunk a little which is amazing news! But as we talked I said something to Dr. Taylor about Miller having headaches once to twice a week, he gave me a look that you NEVER want to see a Dr. Give you the look that says that's NOT good! He looks at me and says HE SHOULD NOT BE HAVING HEADACHES! So we talk about the tumor in his leg and 99.9% of the time an AVM tumor is normally found in the brain, so this being said we will be having a cat scan to see what is causing the headaches. Since Miller has the tumor in his leg Dr. Taylor fills that we should not find a AVM on the brain because this type of tumor does not spread but Dr. Taylor wants to double check to comfort my mind and to out rule tumor. We are not sure when we will be having this done due to we have to see our ped Dr. Due to insurance issues. Dr. Taylor said insurance usually approves this faster if the ped Dr. orders it but if our dr will not order the CT scan then Dr. Taylor will. The CT scan will have to be done at children's and miller will have to be put to sleep. We ask for your prayers that nothing will show up on the CT scan and Millers headaches will go away. Thank you all!


God Bless The Evans

Monkey One and Monkey Two

Most of you know our blog by The Evans Updates! Well that had to change due to another blog with the same name and ours didn't even pull up when I went to search for ours so I think I found a name that fits us very well Monkey One and Monkey Two!

As I have started most of my personal blogs I am once behind again updating it, you would think being at home I would have more time! which I do BUT I forget about this considering Facebook is easy to get on and put a funny about the boys on faster then logging on to the blog, and I keep saying I am going to get better about it also and I don't. So I'm going to say it one more time that I am going to try to update more! And yes I do know about the blog APP!!

Well since my last update we have had several things going on! This summer Miller attended the Capital school for the month of June and LOVED every second of it! If anyone is ever looking for a great summer program I would defiantly look into it! It is all learning but they make it SO FUN for them that they really have no clue they are learning, we will defiantly do it again this upcoming summer.

We have several birthdays in the month of July in our family Mine, Nick's, and Jessica's. For mine we went to the beach with my mom and dad and had a blast even though the kids had melt downs at least once a day to the point I was ready to pack up and head home but we survived and really did have a great time!

Other news that has been going on is we received a letter from UAB about Millers vascular Surgeon leaving and going to Shelby medical center. This was a huge shock and left us making a huge choice to stay at UAB or to fallow. When we first meet Dr. Taylor I fell in Love with him! Just the way he handled Miller and us as well as how fast he moved things along. But the ONE thing that caught my attention was when he said ONLY GOD knows the out come of things! For a Dr. now days to show his religion in an appointment is done very little due to the fact of offending the patient, but we new the Lord had sent us to him for Miller. So with that being said we have made the BIG destion to follow Dr. Taylor even though we LOVED UAB! I'm sure most of you are wondering why we don't go to children but its due to the type of Tumor Miller has. Children's does not see vascular tumors in children and in Millers case his is very rear tumor that usually only shows up on the brain or spin and can be removed if in those places but with Miller his can not be removed due to the tumor is wrapped around his muscle and is feeding the muscle and that is how the leg is counting to grow. Miller is still doing swimming lessons to help with his leg but for some reason this summer he has not wanted to go and as of now we have only had very few flair ups THANK GOODNESS!! But this winter will be the test to see if his last surgery did what it was suppose to which is to slow the blood flow down in the tumor. I guess we will see once it starts getting cooler outside.

Fisher on the other hand is WILD and CRAZY!! He started swimming this spring and LOVES it and it made our beach trip a little better due to the fact that I really didn't have to worry about him as much as if he had NEVER been introduced to the pool. Fisher can hold his breath, kick, float on his back, and put his face in the water, and blow bubbles. We hope to continue swimming during the fall and winter.

It's amazing how time fly's by when you have little ones running around your house! Another school year has started and even though Miller will not start school till next year its hard to believe that he will be 5 this December and Fisher will be 2! We are trying very hard at home to teach Miller what he need to know for Kindergarten next year and of course if anyone knows its very difficult to teach your child at home if they are very head strong and will fight with you to no end to do his work books! We try to take 30 minutes a day out to spend learning something because if we don't start something now he will be really be in a cultural shock next year. Fisher on the other hand is learning as well his colors letters and numbers, it's funny because we will say 1,2,3 and fisher will then say GO!! So now when someone starts to count he always says GO!!

Well most of you know that Nick is a BIG hunter and this year he has BIG plains so he says ha ha!! He finally picked his 4th and final deer head up from the taxidermy but we do still have a turkey! I guess he wants to start off the NEW hunting season with nothing at the taxidermy and I'm hoping we wont have anything to go or pick up this year my walls are filling up very fast!

Football has started and for most that is your weekend! But for us we do like Alabama football and love to win but it doesn't bother if we miss a little because it will be on again! This past weekend Miller got to go to his FIRST Alabama Football game and loved every minute of it and for his age he does really good I must say.

In other news around the house most of you know that I have a little business at home making stationary and note cards which is all personalized, I also do invitations and gift tags. The name is Miller & Fisher designs, I have a blog that you can look at called millersandfishersdesigns.blogspot.com and it has everything I have done with a price sheet. For the most part I stay pretty busy but do come across free time.

Well the boys are getting a little out of hand so I must go and I sure hope I can update more often then what I have been, and again thank you for reading! Oh and don't worry I have had to stop several times to get on to Monkey One (Miller)


GOD BLESS
The Evans

Busy Week

We normally are house bums during the week and on the go on the weekends, but this week we have been on the GO! Nick has been off from Dec 23 to Jan 12 YES a long time, so this week we stayed home Monday but Tuesday Miller started swimming again. Then on Wednesday we went to CHOM that afternoon and did groovin & Movin Miller said he didn't like it but he hasn't stopped talking about it so we will be trying that again. Wednesday night Thanks to yaya and Big George they kept the kids and Nick and I went to Chucks Fish to Eat with Jessica and hunter it was Very Yummy!! Thursday came and it was time for Nick to go back to work and us to get back in a routine I guess you would say haha. Nick went back on days so the boys and I hung out at the house till about 3 and then we went to the store to buy some things to make Chili that was also yummy. Friday came and we had an early play date at CHOM (9:30) of course we were late because nothing can go normal in the mornings. The first thing was Miller got up at 5 saying he was ready to go I said go back to bed I will wake you up Lord that child will NOT sleep for nothing. Then my alarm went off and of course I hit the snooze button at least 5 times, once I was ready fisher was up by then and ready to go I bathed him the night before but lord that hair was out of control so I had to wet it down! I got Fisher ready sat him down to eat and then it was Millers turn to get up (yes he fell back asleep thank the lord) this was the challenge as always! Once he was up and dressed he had to cry/win about his socks not fitting right so we changed shoes that didn't work then we changed socks and shoes and I then had a happy boy thank goodness. By know it was 9:15 and yes we were to be there at 9:30 so as I go load the car I open the door the cat comes in and the dog go's out and the cat had left us a NICE gift at the back door Thanks Lucy! After that was cleaned up and the kids were strapped in the car it was time to go thank goodness and it was now 9:30. Once we got to CHOM we headed down stairs and joined are fun play dates, the kids had a blast everyone left around 11:30 but we stayed and Miller and Fisher played some more we finally left at 12:30 and headed over to eat lunch with Gigi at as Miller calls it Chick a lay (chick ful a) and the little bugger played more he did eat first. after lunch we headed home and crashed I put Fisher down for a nap (he was way past do) and Miller went out side to play. Boy what a day I'm pooped!

Thanks for Reading

The Evans !

We Won!

So I don't have to tell anyone that Alabama Won the National Championship!!!!

Last night I knew would be a long night so I feed Fisher early and he was in the bed by 6, yes he likes his sleep thank goodness because Miller doesn't sleep for nothing. So after I put him down Nick, Miller and I sat down to watch the Tide Bring home #14. We started off eating hamburgers and fries yum! I put Fisher down early because I just new Nick or I would wake Fisher up but guess what he never moved I guess he was out until 11:30 he wakes up and is ready to play. Miller on the other hand is now asleep thank goodness. I guess Fisher just wanted to join the after party at the house with Nick and I. Oh don't worry it wasn't a big bash it was just Nick and Miller and I But I developed a headache after the game so I guess Fisher and my headache were ready to go.Once I put fisher back down I went to bed Nick slept in the chair I guess to watch the 5,00000 reruns on ESPN of the game and the interviews. But all I can say is boy what a game! ROLL TIDE!!!!!

Night and Day

Since I have had fisher we have noticed that Miller and him are NOTHING alike haha. Fisher eats EVERYTHING and Miller wont eat anything! They are so different, both boys birthdays are in December and so of course we had fishers 1 year check up along with Millers a few days later. Fisher is 21.3 pounds and Miller is 31.2 pounds not much different. We keep telling Miller he better watch out Fishers going to get him once he gets old enough.

Leg update!

I think most of you know that we saw a new surgeon back in November and he told us good and negative things:

Good things:

Miller can have a surgery to help reduce the pain in his leg and may only have to have this done every 5 to 15 years depending on how well everything go's the first time.

Negative things:

Miller will have to be in the hospital for 1 to 2 nights in ICU at UAB.

Miller is VERY small for his age (witch we already new that)!

Millers leg is not getting the blood flow that is needs for the leg to grow or work the way it needs.

Miller has one leg shorter then the other but not enough to worry about at this moment.

These are just a few things we have learned good and bad as you read you saw there were more bad then good! But Nick and I know God is in control and will guide us in the direction we need to take to get miller better. When we went to meat this new Dr. I was excited but very nerves just because its the unknown to what they have to say about the whole thing. The last one we meat with brushed us off and never contacted us again very upsetting. When I told Millers oncologist he sent us to this new Dr. Dr. Taylor is a Very Nice man the best part of the appointment (well there were several) was that he said the only one that knows the out come is God I think I was in shock just to hear those words because its not everyday you have a Dr bring the lord into his appointment. He also has three small children around millers age and used them several times as examples and of course that makes a momma feel so good. He told us that he would like us to monitor miller for the month of Dec and if he complains more then once a week then it would be in the best interest of Miller to go ahead with the surgery if not then he would like us to wait till he is a little older to do anything. Well threw the month I have written EVERYTHING down and BOY he complains more then I thought the least amount was 3 times a week so now Nick and I have to make a choice on when to have this done. Of course Dr. Taylor has to get a team together to work with him so this may take a while as does everything else with UAB. Oh don't get me wrong I LOVE UAB But when it comes to children they are kinda stand off a little. But with the tumor Miller has Children's is out of the question they will not see us. So with that said we will pray and wait for the perfect team to be put together for Miller.

Thanks for reading

The Evans

Read before wrighting

So after I posted the new post I went back to read it and saw that I had writton after I had Fisher boy do I feel stupied! I guess I need to make sure I read before I post next time. But I hope that wont happen again I hope to update at least once a week I would love to update everyday BUT with two kids at home I'm not so sure that will happen.

Way way to long!!!

Well the last time I posted I was on bed rest prego with fisher well it has now been a year later!!! Yikes that's way to long to let this blog go. So I'm going to try really hard to update better. Well as I said it has been a year since I had updated miller turned 4 on dec 15 an fisher turned the BIG 1 on dec 20th. We have had such a blessed year with both boys. Of course bringing fisher in to our family was a big blessing and finding a surgeon that told us WHY millers leg hurts him and that he can help the pain those were too BIG blessings that we are so thankful for. Also threw the year I was able to quit work and stay at home with both boys! Yes that is right we pulled both boys out of daycare and they are at home with me full time. It has taken some adjustment but we are making it. I am working with miller daily on his letters and as of right now we are working on how to spell his name this is very frustrating for him and I! But the Lord defiantly helps him and I out daily with this. Fisher started walking sat still a little wobbly but that's ok because he is everywhere!! Hope to share pictures better also so everyone can see how both boys are growing!